Thursday, April 21, 2011

We still know nothing...

We were down at the hospital by 4:00 PM yesterday, blood was drawn, and then we sat in the waiting room until just about everyone was gone.  We knew they were supposed to be squeezing him in, so we weren't too concerned at first.  Finally, we checked with the receptionist and she called the clinical trial nurse who said we should go home.  Reid then got a call on his cell phone while we were still in the parking garage and was asked to wait while this person checked again with the clinical trial nurse.  She then called him back and said he'd meet with the doctor today, but didn't know when.

We are all upset and still don't know what's going on.  No appointment with the doctor has shown up on his online schedule and we've heard nothing from the clinical trial nurse.  It's now almost 9:30 and I e-mailed her last night when we got home asking what he's supposed to do.  So, we wait.  I feel like Reid has been treated rather poorly, but I'm not sure who is to blame.  He's done everything asked of him and on more than one occasion we've jumped in the car and rushed down there.

When I know more I'll let you all know.  Thank you once again for your support.  Betty


  1. I can feel your frustration. Hope you find out something soon. You all are in my prayers.

  2. Oh Betty, I'm sorry for this frustration and fear! Is there someone at the hospital in patient advocacy that might be able to help?

  3. Hopefully it's nothing bad and they are just temporarily disorganized. I was wondering last night what you knew. Let us know.


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