We found out this morning that Reid has relapsed. Yes, the Hodgkin's is back and my heart is breaking. What next?
We don't know whether or not Reid was given the new Hodgkin's drug, Adcetris, in the clinical trial. If not, that will probably be the first treatment option. They didn't know yet since it takes a little time (paper work) to get it revealed. Meanwhile, another transplant is also an option, but this time using donor cells. They're going to go ahead and test Keith and Troy to see if one of them will be a match.
I just get so sad thinking about all that Reid has been through and yet 99% of the time he goes through it all smiling. I would not be so nice. Our goal is to get him well and that's where we are going to focus our attention.
We'll certainly be spending more time again down at MD Anderson, so the E-mail sitting in my mailbox might not get my attention anytime soon. One of these days I will get caught up, but between clinic visits and handling the things that must get done since Jim's death it will probably take longer than I originally anticipated.
I'm also busy trying to get the house cleaned for the house sitter too. I'll be back!
Thank you for your support and prayers.
Betty, first things first. Take care of yourself and Reid first and the other things will resolve themselves. My prayers and thoughts are with you and your family.
ReplyDeleteLoretta from AZ
You are in my thoughts, and I am hoping for good news for you soon.
ReplyDeleteDo take care of yourself!
If you need anything while in NJ, please use the below e-mail, I am monitoring it.
Again, I just couldn't believe what I was reading in your post. Short and Sweet is right, first things first. My heart is just twisting for you, Betty. You're one of my best friends. I am just so sorry.
ReplyDeleteOh Betty, this breaks my heart! I'm praying for complete healing for Reid ...... I'll be praying daily for healing and strength...
ReplyDeleteTake care of yourself!
Hugs,
You're right! Life isn't fair at all! I don't like that all of this is happening to you all at once like this. I actually couldn't write when I first read this. I had to cry a little and come back after I've cooled down because this just isn't fair!
ReplyDeleteI am now hoping that Reid can take the real deal if he didn't have it the first time. I'm also hoping that your other sons are a match.
I am so sorry all of this is coming down on you at the same time Betty. Just know that you and your family are in my thoughts and prayers.
Hugs,
Angela
Betty, I got onto my laptop to check on you. I am so very sorry to hear this. I can't een imagine the load you are carrying.
ReplyDeleteI am seding you bot all kinds of prayers from Texas.
God be with you all.
I don't get mad often - but I am mad about this. I just don't understand and I sure bet you don't either.
ReplyDeleteI don't know what to day.
I am so very sorry.
You know I will be praying.
Don't worry about us out here - take care of yourself and Reid.
LOVE - HUGS - PRAYERS!!
sandie
Again I am so sorry to read this news, Betty. I had hoped and prayed for Reid's full remission, but I guess it not to be at this time. But I have hope, Betty, that the new drugs and stem cell procedure will be the cure this time aroun Reid is young and his spirit is good, so I know he will continue to fight and get better.
ReplyDeleteTake care of yourself too! Yiou ahve so much to deal with right now. {[HUGS}}