Friday, October 30, 2009
They started early and around 9:00 they began handing out clipboards with the form to be signed and by 9:20 Reid had gotten the immunization. For me it was a very emotional experience. I felt like crying, but Reid would have been mortified, so I kept my emotions in check. We celebrated by having breakfast at Denny's.
What a difference a few weeks make. All of a sudden the Swine Flu vaccine became very important to us. Before he left the hospital they gave him the regular flu vaccine, so all he needed was the Swine one.
We were commenting today on how Howard Hughes almost seems normal to us now. We carry hand sanitizer and every time we touch a new surface we sanitize.
And so we keep on plugging along and continue to try and do everything we can to get treatment for him. Thanks again for all your prayers! I can't even begin to tell you how much they are appreciated.
I finally got some pictures off my camera and uploaded to the computer. They'll appear in my next post because right now Blogger won't cooperate.
Wednesday, October 28, 2009
Since Reid doesn't have insurance the hospital told us to go to a clinic in Galveston County and they would contract out his treatments. Well, that's not the way it works. We've been to the clinic and the doctor told us that we shouldn't be optimistic since they no longer have any place to send people for specialized care since UTMB in Galveston stopped doing indigent care post Hurricane Ike. If we lived a mile away in Harris County there would be services available.
I haven't really been paying a whole lot of attention to the health care debate since it all seemed so political and I've always considered politics a necessary evil in a Democracy. No matter what is proposed the other side is going to object. That's just the way it works. Now that it's impacted my son's life I'm paying more attention. Yes, he should have had insurance, but he didn't and he's 33 years old and in good health except for the Hodgkin's Lymphoma. With treatment there is over a 90% chance that he'll be cured, but he needs treatment. So, we're trying to figure out a way. He had insurance, but quit his job and then went back. He lost his insurance and was ready to fill out the forms in October and send them back in when he became ill. Please continue to pray. This whole thing has been an emotional roller coaster and the ride is not over yet.
I'll try and be better with updates, but I spend a lot of time online trying to find resources, taking Reid to appointments, etc. And today I mowed the lawn and I'm trying to vacuum the house one room a day. And, Jim and I are very tired.
Sunday, October 25, 2009
(I tried twice to put up a hyper link for Hodgkin's Lymphoma from Wikpedia and both times the wrong thing appeared. I've given up! Just Google Hodgkin's Lymphoma for more information.)
Saturday, October 24, 2009
Now we have to worry about where he'll receive treatment because he does not have insurance. Up until now we didn't have to worry because he went into the hospital on an emergency basis. We've been told that there aren't that many resources in our county and UTMB at Galveston does not do indigent care (that's what it's called) post Ike. The social worker has given us the name of a clinic and once the "official" diagnosis is made there might be other places we can try. I would have loved to have seen him continue with the doctors he's been seeing...especially the Oncologist. Everyone has been wonderful at Hermann Hospital and he's received excellent care. I just can't say it enough. We have truly been blessed. God led us to that hospital thought their emergency room. I don't know what would have happened if we had gone any place else.
I'll be heading back to the hospital in a little while. I've turned off mail to my Yahoo groups and have been deleting a lot of mail. If I've missed something I apologize...my time at home is limited. I can't even begin to say how much I appreciate your prayers!!! Betty
Friday, October 23, 2009
Yesterday he went around 20 hours without any pain medication which is good. I'm a little concerned about his coughing. It seemed to increase yesterday, but he has to inhale into a devise that helps with his lung expansion and that causes him to cough more. I'm hoping that won't be a problem and the chest tube can be removed and he can come home.
This morning when he got up to walk to the bathroom I could see him walking a little faster. He uses a walker and I'm assuming he will until he can actually feel his feet under him. There's one injection that he gets in the stomach and he can't feel it when they give it to him, so he's still quite numb from the waist down. Just not sure how much of that feeling will return.
We're hopefull and appreciate all prayers. Thank you!!
Thursday, October 22, 2009
This was after he was moved out of ICU and post back surgery.
I hope we can bring him home in the next day or so. I'll stay at the hospital again tonight. With the chest tube I'm there to help him if he wants to get up. The one tube has to be disconnected and that way he doesn't have to wait for a nurse.
His walking seems to improve a little each day although he still doesn't have all the feeling back. They told him it might not come back, but we definitely see improvement. PT works with him a little each day and he uses a walker.
All prayers appreciated.
Please excuse all errors...typing or otherwise. Not a lot of time to proofread.
Wednesday, October 21, 2009
Our 33 year old son, Reid had been complaining about a back ache for a few weeks. Then he developed a cough and went to one of those walk in clinics at the grocery store where he was given medicine for bronchitis and told that if he didn't get better to go somewhere else where he could see a doctor. He didn't get better so on October 10th he went to an emergency clinic where they gave him muscle relaxers for his back, something for pain, and a decongestant. He still didn't feel any better and by now was complaining about his legs feeling funny. So, on October 13th my husband took him to a different emergency clinic where they took an X-ray. At first they thought he had an enlarged heart, but after a cat scan realized it was a large mass in his chest. He was immediately transferred to Memorial Hermann Southeast Hospital. After an MRI he was transferred down to Hermann Hospital in the Houston Medical Center and put in the neuroscience ICU. They had also had a mass on his spinal column.
He was scheduled for surgery on Wednesday, but it was canceled due to concerns expressed by the anesthesiologist. She wanted more tests while the neurosurgeons wanted to get that mass out quickly because it was pressing on his spinal cord. Due to the large mass the anesthesiologist was afraid that when they turned him over for surgery his breathing would be compromised. Then it was decided to do a chest biopsy under local anesthesia in the hopes they could determine what it was and start treatment without surgery. The pathologist were unable to determine what it was after four different samples. So, it was finally decided that the benefit of surgery outweighed the risk and the spinal surgery was done on Friday. Preliminary pathology seems to indicate a cancer, but once again we're waiting for a final report. They seem to be having trouble identifying what's wrong and are doing stains. (At least I think that's what it's called and it takes longer.)
He's been up on his feet walking a little, but the legs are still numb. Then Monday they thought about sending him home, but realized air was leaking from the chest biopsy into his skin which happens sometimes. Actually, it has something to do with the lung separating from the wall and air leaking in. They've been watching for it. So, a chest tube had to be put in for a few days. It was good that he didn't come home or we would have been rushing him to the ER.
I can't say enough about how wonderful everyone has been at Hermann Hospital. We've probably spoken with ten or more doctors. Last night I spent the night since he's been even more uncomfortable since the chest tube was put in. I'll be spending the night again tonight. I'm home now doing a load of laundry and taking a shower.
When I know more I'll try and post more. Please keep Reid in your prayers. Thank you, Betty